Wednesday, May 12, 12pm to 1pm
Many of us are becoming increasingly familiar with provincial legislation allowances for the disclosure, access and use of pseudonymous (i.e., unique identifiers removed) personal information for research purposes. We are not however, always as familiar about consent requirements. While the privilege exists for receiving a consent waiver when accessing and using administrative data, this privilege does not always apply.
Consent requirements must be compliant to ensure timely access and appropriate use of administrative data to inform research. This session will provide an overview of why and when consent is required with respect to administrative data. In particular, the session will provide guidance and examples on how to obtain informed consent when seeking to link administrative data to other data sources such as clinical trials, questionnaires and surveys, biobanks, etc.