As one of the most secure data centres in Canada, NB-IRDT complies with all relevant legislation governing the use of personal health information and personal information, including PHIPAA and RTIPPA.
We offer the following:
Data business owners transfer data under a Master Data Sharing Agreement to the NB-IRDT platform where it is made available for current and future research, through linkage with other platform data, and accessed only by approved users. This is our preferred method
Data business owners transfer data under a Data Sharing Agreement for a project-specific task and may link it to other platform data. Once the project is complete, the dataset is removed from our secure facilities and returned to the data business owner.
NB-IRDT acts as an agent for managing data under an Information Management Agreement. Data business owners may transfer data to our secure facilities for safeguarding, or to link two or more external datasets for a project-specific task. These data will not be used by other researchers, and will not be linked to other platform data. Data are returned to the data business owner(s) once the task is complete.
Data business owners can expect assistance with the development of relevant documentation, navigating privacy legislation, and data preparation for the crosswalk process (the method through which data is de-identified).
Data Sharing Agreement (DSA)
Outlines the general terms and conditions of data sharing between the department and NB-IRDT.
There are three types of agreements:
Individual Disclosure Schedule (IDS)
Appendices to Data Sharing Agreements and Master Data Sharing Agreement, the IDS outlines specific terms and conditions for a dataset, including variable information. Each dataset requires its own IDS.
Privacy Impact Assessment (PIA)
An assessment outlining the risks of sharing a dataset. Each dataset requires its own PIA.
A descriptive guide of the variables in a dataset.
Crosswalk application with the Department of Health (DH)
Application to the DH to complete the Crosswalk process
Data Sharing Agreement with the Department of Health (DH)
Data sharing agreement outlining the terms and conditions of data sharing with the DH.
The data custodian cleans the data and prepares it for transfer. NB-IRDT and the Department of Health staff will guide this process following set policies and procedures.
The data custodian delivers data to NB-IRDT secure facilities.
For more information and assistance with the transfer of data, please contact firstname.lastname@example.org